senior man in wheelchairInformation about cerebral palsy usually focuses on children, and for good reason: cerebral palsy is a group of disorders that impair the brain and nervous system and usually surface within a child’s first two years. But cerebral palsy isn’t just a children’s condition. There are also many adults living with cerebral palsy.

The same medical advances that have increased the lifespan of the general population have done the same thing for cerebral palsy life expectancy.

Most people with cerebral palsy now lead long lives. However, it is only within the last 15 years that people with cerebral palsy have started to live long enough to be concerned about the effects of aging on top of a lifetime of living with disability.

With aging comes special challenges for those with cerebral palsy. Though cerebral palsy is a non-degenerative condition, meaning that it doesn’t get worse with aging, a lifetime of fighting physical impairment can mean that people with cerebral palsy often start feeling the effects of age much earlier.

What are the Symptoms of Aging and Cerebral Palsy?

Some common physical problems that people with cerebral palsy experience as they get older include:

  • Increased pain. Pain is the most common problem for older adults with cerebral palsy. The hip, knee, back and neck are the most common sites. People with cerebral palsy often have early-onset arthritis, as well.
  • Difficulty walking. 25% of people with cerebral palsy who walk as children lose that ability as they get older, either because of pain, or because using a wheelchair or scooter becomes easier.
  • Falls. Falls are a concern among all older people. Because people living with cerebral palsy have decreased mobility, they are at  risk of falling more often, increasing the chance of serious injury.
  • Dental health problems. Many people with cerebral palsy experience issues with dental health as they get older. It may be hard to find dentists who are able or willing to work with individuals who cannot remain immobile during routine exams or for therapeutic work.
  • Long-term effects from medications. Taking many medications for many years can cause a variety of long-term problems.
  • Trouble eating and swallowing. Impaired motor function means that people with cerebral palsy can have trouble eating and swallowing food, and may have increased trouble as they get older.
  • Other health problems. Studies show that 90 percent of adults with cerebral palsy do not get regular preventive medical checkups such as mammograms, Pap smears and prostate exams. This can expose older individuals to the risk of undiagnosed conditions such as cancer.

What do we know about aging and cerebral palsy?

Scientific study of how aging affects people with cerebral palsy is still in its early days. Doctors know that people with cerebral palsy often experience the above cerebral palsy symptoms as they age, but they do not yet have a good understanding as to why.

There have not yet been the large-scale studies that follow children with cerebral palsy through adulthood necessary to discover how the aging process affects people with mild cerebral palsy. Researchers who study cerebral palsy have recently begun to raise awareness about the need for these kinds of studies.

What is cerebral palsy and where can I learn more?

We would love to hear from readers who have cared for someone with cerebral palsy. What were the challenges you faced? What advice can you share? Please share your cerebral palsy stories in the comments section below.

  • Christian Ray

    I am 41 years old and have spastic cerebral palsy. Fortunately, it’s a mild case and I’ve always been highly functional. I drive , have a full time job and exercise (cycle) . My question is, what can I expect as I get older? I can feel myself slowing down a bit. I’m currently experiencing lower back pain. Thank you for your help.

    Christian Ray

    • Derek Jones

      Hi Christian – we would recommend speaking with your physician or an advocacy resource to get you oriented with medical resources and/or guidance to your questions.

  • Megan H


    My name is Megan, I am 25 yrs of age and have been living with cerebral palsy since I was a child, I was born with it. It is great to read this article about aging with it. I wear an AFO and have been having knee pain.

    Thanks for the info


    • Derek Jones

      Hi Megan – glad you enjoyed the info and thank you for your courage and perseverance.

      • Megan H

        Lol, your welcome, there is always someone out there who has it worse and just knowing that The Lord has a purpose for me helps. Unlike, the gentlemen who commented above I do not drive, but am working towards that.

        I am also going to college to be a computer programmer and enjoy that immensely. I am grateful for any other articles you could provide. It is tough to find articles on how to manage CP as you age, but doing the best you can is All you can do.

        • chelsi

          Hey megan I also have have mild left spastic cp if you would like to find me on fb I’m 25 also my full name is chelsi lopez. We can talk more

          • Tiffany

            Hi chelsi iam Tiffany I am 31 years old I also have mild left Spastic CP if you would like to add me on Facebook My name Tiffany Ortigoza I would like to have you has a friend.

      • bob parker

        very interesting i have cerebral palsy and managed to work for 27 years as a qualified learning disability nurse but do to many operations on both legs over the years i had to have my left leg amputated in 2004 and my right one last year but i would not change a thing i loved my job and i looked after some brilliant people and i worked with with some very special people who said the nhs was bad

  • Kathleen Huycke

    I found it interesting to read your comments regarding living with Cerebral Palsy. There is not much written on aging with CP and it is difficult to know whether changes in quality of living are “normal” or a good part of CP. I am 64 and was born with CP. I worked 30 years as a teacher but I did retire early. I was able to live quite an active life with the exception of sports; coordination, balance and endurance being problems. I had no aches and pains until a year ago. The pains seemed to come on quite quickly and I have slowed done considerably this last while. I believe that those of us with CP have had to work harder all our lives doing everyday activities that our bodies are more tired. I feel I am aging prematurely but I am thankful for the many years I was able to live an almost normal life.

  • Gerald W. Scott

    Hello, my name is Gerald. I will be 62 in a couple of weeks (Nov. 7). I was diagnosed with a comparatively mild form of Cerebral Palsy. I have always been able walk, though with a obvious limp; and my right hand only serves as a helper hand. When I was very young I stuttered quite a bit (I still find it problematic from time to time.. but is no longer the issue that it once was). As a teenager, my “good hip” (my left one) went bad, and, after 3 surgical procedures to correct the problem, a fourth operation resulted in the ball and socket being removed and my hip fused. I Falling has always been a situation that has happened, with devastating results. The latest fall took place in 2008, when I fell down a flight of stairs, resulting in the fused hip breaking. I now use a powerchair to get around in, even in my house, most of the time.. when walking, I use my walker or cane. Recently, I have begun physical therapy, because of pain, stiffness and the affects of arthritis. Presently, I have pain, ofttimes debilitating weakness included and pain in my lower back, and walking, standing and sitting for any length of time cause me great pain and discomfort.

  • Ann Costanzo

    I was happy to find your website. I am a 54 year old with cerebral palsy. I was born premature and weighed 2lbs. 4 ounces. I also have a twin who is unaffected. A few years ago I was also diagnosed with spinal stenosis. Needless to say, I had difficulty walking without my nerve being pinched and taking a hard tumble. I have always been an avid beach walker but now find it difficult to walk any distance without pain in the lower lumbar region. What can I do to to continue to have a functional quality of life? What information do you have about increasing flexibility, and reducing stiffness? I am not an advocate of taking medicine for everything. Please continue putting out useful information.

  • Lisa

    I’m 50 with spastic CP, low back pain, osteoporosis, balance and hamstring issues. Ambulatory, drive, work FT. 2 AFOs, 2 canes, though for many years I walked without them. The best thing I can recommend is regular physical therapy. I avoided going back to it after many years, but now going back is the best thing I could have done. Dry needling helps with my hamstring issues, core work helps alot with low back pain. Get a Doctor of Physical Therapy if you can (DPT). If you get a good PT it’s not like PT when we were kids. Be vocal, advocate for yourself, and remember to think outside the surgery and medication box.

  • Coolcath

    Hi, I am 46 and was born weighing 3 lbs and arrived 2 months early. Like others have mentioned above, I was soooo happy to come across this site! I have very mild cp and just walk with a limp. However, the last 3 years I I have been dealing with extremely tight thigh muscles. I am having difficulty with getting up from sitting, walking or standing g for long periods of time. I headed back to PT as soon as I was able to accept the fact that it was starting to affect my daily life. PT didn’t seem to help much and they were baffled as to why my legs wouldn’t loosen up. They sent me to a neurologist, who sent me to an orthopaedi surgeon, who told me my back wasn’t that bad and basically that I should toughen up. My problem is that the tightness is getting worse very quickly now and I don’t know where to turn. Thinking my pain was caused by back problems, I have tried pain injections, ablation, acupuncture and massage….help!!!!

  • Donna

    Hi. My sister just sent me this website link and I’m so glad to be able to reach out to others who are experiencing similar things. I’m 51, born with mild right-sided CP. I had some form of physio and exercise program much of my childhood years. At 14, I had my Achilles tendon cut in several places which allowed me more of a flat-footed walk on that side and lessened the amount of falls I took. I tore the cartilage in my left knee at age 21 and the right knee (being the weaker side) tore in sympathy at age 23. Despite that I lead a pretty normal and quite active life with only regular massage therapy sessions to ease muscle pain till my late forties. I menopaused early and have osteopenia. In the space of twelve months I took 3 serious, hard falls, the last of which was down the stairs while sleep walking. I think that finished off my knees and also damaged my back. I have struggled to walk properly since and have needed canes, crutches or walkers to get around. I had several injections in my lower back (one to rule out the hip being the cause of pain), all to no avail. I’ve also tried lots of physio therapy, pool therapy, acupuncture, acupressure, IMS Needling, naturopathic treatment and Cranio-sacral treatments. My knees were scoped and it was found that both cartilages were non-existent except for shreds and that I was down to the second layer of bone. I had knee replacements done 7 months apart in 1012 & 2013 and other than the arthritis, I love my new knees. However, I thought that having new knees would help ease the back pain as my limp decreased. Unfortunately that hasn’t been the case. My back pain has continued to worsen as by now i have a good case of scoliosis in my back and I have done the rounds of back specialists who all say they wont operate on my back. I also continued to feel pain increasing in all my joints, especially my right ankle which has probably weakened from my original surgery in 1977, but also in my wrist, fingers and elbow of my good arm. I know I haven’t mentioned neck and shoulder pain yet but that has all been ongoing for many years from crushing several vertebrae during the active part of my life while body surfing.
    Don’t get me wrong – I feel very lucky to have the life I have had and have always been thankful that I wasn’t (and still trying hard not to be) wheelchair bound. I am on a slu of medication but am trying to find a balance being able to tolerate some pain without being so medicated that I can’t function properly for my pre-teen kids. Would love to know of any doctors who have/are studying ageing with CP.

  • Donna

    I think the biggest problem for people with mild CP is that although we are generally quite active in our younger life, we are prone to falling more than the average person without CP. Injuries received in these falls only serve to weaken any abnormal stresses on our body. I tore the cartilages in my good knee at 21 by simply standing up from a cross-legged position on the floor. Ripping off my big toe nail was a constant result of many falls, to the point that I asked if I could have it surgically removed. I was declined but have since discovered Keen brand of flip-flops are ideal for summer wear as they are designed with a ‘toe protector’.
    Hindsight: I wished I would have learn to tumble into a roll when I was young. My kids too Aikido lessons recently and the first thing they were taught was how to roll properly, frontwards or backwards. Imagine the impact injuries that could have been avoided if I’d been able to turn each hard fall into a harmless roll. I hope nowadays physiotherapists working with children with CP make tumbling into a roll a part of regular treatment exercise.

  • Larry

    Im 45 and left Hemaplegia I worked as a Diesel mechanic till 37 years old then had spine surgery because I couldnt walk much. I rethrned to work for a year and a half then retired. I try to stay busy and upbeat but the pain gets me at times.

  • Leah Serdoner

    I am 56 years old female with cebral palsy and I am starting to have Alot of pain in my neck back and shoulders. Some times it is extremely painful and becomes hard to even get out of bed. Has anyone else had this going on. Thanks Leah

  • William

    I’m 30 and now have joint pain and would love to know what cp has for me in the next few years and if I has any berring on your heart

  • Katherine

    Hi, i’m 27 and have CP. Im preschool teacher and until recently have managed to work full time with no problems except experiencing more tiredness and aches sand pains than my colleagues. However i have recently noticed that m balance has deteriorated so much i need to consider my career options. Was wondering if anyone else experienced this?

  • Donna

    Hi Katherine,
    Lack of balance was often a part of the issue for me and the reason for some of my many falls (tripping over my toes being the main reason). But lack of balance wasn’t a big part of my issue until my late 40s. In recent years it’s become a huge issue and the reason I can’t walk much without a cane. You are young yet. My advice – if you can, learn how to turn a fall into a roll so that fear doesn’t restrict you the way it does now for me. The more i’m in pain, the more I’ve slowed down, the more weight I’ve gained, the more i’m in pain. It’s a vicious circle. If I had my time again, I would practice falling into a roll safely over and over while I was younger until it was second nature. I would have a therapist along side and some good soft air mattresses.
    I’d love to hear anyone else’s feedback. Donna

  • dalya

    HI all ,

    I am 32 and also have mild CP . in my childhood I under went alot of ops .
    I am only effected in my walking .

    For the past 5 years I ahve been suffering from pains in my ankels while walking .
    And in the past month I have started to get terrible lower back pain .

    Has anyone had the same symptoms and do you know of good kinds of exercise that is good for this and for CP in general ? ( I hate swimming and can’t ride a bile )

    • Pip harrington

      Hi my name is pip am 31 I have mild cerible palsy I’ve dislcated both my knees. Not so long ago I twisted my ankle now I have bad knees & back end I go 2 see carapractor & that seems to help me.

  • xoxo

    I’m a 25 year old with mild CP. I was wondering if anyone can tell me what kind of exercises I could do to help with my pain. Thank you.

  • Donna

    The best thing I’ve ever found and it’s only recent, is a physio / massage therapy clinic that also has weight-lifting and strength building equipment on site. As a client there, I can get a monthly pass to use the equipment. The equipment is all the circuit training type that you can’t do much wrong if you use it correctly. The neat thing about doing my strength building and exercise there is that therapists are on site, they have my medical file, and they can help me if needed. But the best part about going there verses a gym, is that I can take my time, I am in my comfort zone and I’m not being stared at or judged by fit, healthy, exercise fanatics.

  • Monica

    My cousin is 76 years old and I am trying to find affordable care for her presently. She has had both feet ‘redone’ to realign her bones so she can walk without a great deal of pain. Her toes were perpendicular to her foot – now they are not and her walking has greatly improved. She has the use of one hand and the other serves as a helper so she is able to knit. She has never held a job that I know of . Living in a northern climate, we are concerned about her falling on the ice/snow getting in and out of her apartment where she lives with her cat. She has been on a feeding tube now for about 10 years. Is there any kind of funding that anyone knows about here for late life care? Am trying to find an ‘independent living’ situation for her as she is fully capable of caring for herself. But to date, what I have found is that for low-income people, having a feeding tube will prevent you from entering an independent living situation… tho she handles this for herself. Quite frustrated at the moment with the entire independent living vs assisted living vs nursing home situation here in the US. Any direction or suggestions are welcome.

  • mary

    I can relate to much of these comments. Like other people here I have a mild case of CP-but now at 58 things are catching up. I hurt much of the time around my neck and shoulders. I am currently getting massage therapy and chiropractic treatment which seems to help a bit.

  • Mike

    I am a 66 year old mail with mild CP(equinius foot deformity – archilles lenthened, Stiff-knee gait pattern) have worked my life as a pharmacist. Two and half years ago developed back pain and hamstring pain. MRI showed 2 bulging and one herniated disc. Surgeons said result would increase damage with no relief. CT showed extensive arthristis S1 to L5. Being evaluated for a nerve stimulator implant for the pain. Has anybody had any results with this?

    thanks for the site

  • Bonita Hill

    My son is 29. He has Kernicterus with CP and severe hearing loss. He is unable to speak, but has a communication device. He has two injuries to his cord in the cervicle area, one at five, and an infarct of the cord at twelve, so now considered a tetraplegic. He is small, about five ft. tall and seventy pounds. He is totally dependent on me.
    He is generally good natured and happy, we do everything possible to make him happy, but lately in the evening it’s becoming more difficult. I jokingly say he’s sun downing, but am beginning to wonder if there’s more to it. He has been taking pain meds for many years. He sees a pain Dr. in Boston and she is very in tune with his pain, that seems to get worse as he ages. Do you have experience in this area? Is there a Doctor somewhere who might have answers?
    It’s good to have a place to ask questions. Thank you.

    • Denise Cyr

      Hi Bonita,
      I am also in the MA area. My son is 37 y/o and he has seriously declined in the past few months. He is non-communicative so its hard to tell what’s wrong. I think he is in pain and also depressed; some days he refuses to eat or take his meds. We are not sure where to turn. His PCP put him on Haldol but I don’t think that’s the answer as he has become incontinent over the past few days. We are considering a Baclofen pump and he also needs a new wheelchair. The botox injections don’t seem to do much to relieve his pain. It just seems that whatever we do causes another problem. Can you share with me the name of your pain doctor in the Boston area?
      Thanks so much.

  • cindy


  • Mary Lee Crescenzo

    I am 53 years of age with cp since birth. I am having arthritic knee pain which is making it harder to walk. I am considering gel injections but looking at knee replacement down the road. Any one going through the same thing?

  • Evelyn Baker

    My daughter was diagnosed with mild quad. mixed CP 33 years ago. She is now turning 35. Although she wasn’t able to walk until she was 4, she has maintained a healthy and active lifestyle with few side effects. She does have mild cognitive disability also. Through P.T., OT. And speech therapy she continued to improve and become more independent, with a outgoing and bubbly personality.
    Resources and info was limited when she was diagnosed compared to now. A few years ago, since I knew CP isn’t progressive, I thought she had hit her plateau and would maintain it the rest of her life. But when she hit her 30s she started having pain, spasms, falling issues, turned in feet and depression problems. She is getting PT again and brace on one leg but now they are recommending a walker.
    I hate to see her losing her mobility and active lifestyle. I hear from some that being active is putting more stress on her joints which can cause faster aging. And others saying the more active the better to maintain what you have. I’m lost. I
    I’m glad all if you are here to reach out to and get information and hear your stories! 33 years ago I had trouble finding many resources, and since my daughter had so few health problems, I’m only now re educating myself with updated info on CP. I’m afraid denial has been a coping mechanism of mine. I love her so much!
    Thanks for listening and I would welcome your experience passed my way too..

  • Kayla brunmeier

    Hi I’m Kayla and I was born with a mild case of cp mostly just affecting my right side I’m 21 I’ve had about five heel cord sergerys in my life but now in the past couple of months my hands have been hurting me a lot sometimes the pain is really unbearable anyone else experience this what did you end up doing to make the pain at least livable

  • Ebony

    @Evelyn Baker- I am 35 with a mild case of spastic diplegia in my right leg. I am very active, but for the last 3 -4 years I have experienced pain issues. Basically what I found is that it is about modifying, but still having a full life. For instance, I live in NYC. Riding the trains and buses to work five days a week had become too much for me, so I started a home based business. I don’t make as much (yet) But my body is worth the sacrifice.
    The main thing that I watch out for is not how active I am, but how high impact my activities are. If I decide to play tennis on a weekend then I will keep all of my activities that week leading up to that date, pretty sedate. And I rest the day after. I also take a mild anti inflammatory after strenuous activity( whether pain is present or not) because I have learned that my body will make me pay later. I massage my leg and use a heat pad as well. Whatever works. Different things work on different days. You have to learn to listen to and honor your body. I have also learned that stretching can be your best friend. Work out if possible to gin core strength. the more I work out and stretch the stronger I get. Stretch bands, low level yoga . When I am really consistant with the low impact exersice I can even handle some high impact stuff. Having a good diet and maintaing a health weight is important too. The better stretched and the more worked out I am the less pain I have. Us folk with CP have to learn to manage activity with impact.

  • Terese Melton

    Hello. I’m a 53 yr old deaf woman who was diagnosed with CP by the time I was 2. I didnt walk “properly” until I was 4. Sports helped immensely with balance, etc. But as I entered my 50’s. I’m finding that my legs get weaker, and arthritis has set in my knees. I am fighting pain constantly, and do not have medications for it. I’m trying to get a power chair, but I draw small SSI, so I cannot get one. I live in Tennessee, and can you recommend an specialist who majors in the area of CP and arthritis?

  • shelly r

    I will be 40 on May 13th, and was diagnosed with Cerebral Palsy within my first year of life. I underwent several years of PT, OT, and Speech Therapy and I was released from Scottish Rite when I was 7 or 8 yrs old. People think that i had a mild case but I remember that last visit very well and the Dr said I was a “miracle child”. I had to be in remedial classes until I was in 5th grade and was released from speech therapy when I started 6th grade. My elementary years were very hard as kids can be extremely cruel to those with disabilities. I grew up having to deal with people not being able to understand me and had leg pains weekly that would keep me awake for hours until aspirin kicked in, the only thing that helped to reduce the pain was going skating twice a week. I perservered with the help of my very supportive parents and God. I currently have a Associates Degree in Respiratory Therapy, happily married for 22 yrs and have had 5 children. But, as I get older I am having health issues occur. I was diagnosed with mild to moderate arthritis in both knees this morning. I would like to receive additional information as it’s available on Aging with Cerebral Palsy.


  • Karen Raysor

    My brother has CO and he’s 34 can he still haves surgery to help him walk on his own?

  • christopher mcdonald

    Hi my name is chris i have a mild case of cp to i am 27 years old love lifting weights staying active im always looking for friends that have cp as well u can look me up on Facebook christopher mcdonald im from Philadelphia pa.

  • Ro and Laura

    Hi my name is Ro and I am a caregiver for Laura who has cerebral palsy, and she has recently been facing severe back pain while sitting up in her wheelchair.
    We have tried adjusting her several different ways, but the only relief is for her to be put back in bed.
    Does anyone have any suggestions for us to try?

    • Michael

      i have found that my back pain is less if I get out of my chair or change position ever few hours i hope this helps you

  • Teresa Langrel

    I am 60 years old, born with Cerebral Palsy and Scolosis now have Arthritis esp the left leg which is my weak side, have trouble walking and doing daily routine. I work part time and on my feet. I walk with a cane. scared and afraid I will get worst have any suggestions? have OMT on my back every 2 to 3 weeks. Please help me hopefully get better.thank you Teresa Langrel.

  • Donna

    Update from Donna. My knee replacements and strength building exercises were coming along nicely. Then came Spring and I carefully started some gardening work. (I love my garden as it is private and peaceful and is my mental therapy). Using only a small ‘ditch shovel’ I dug small amounts of compost dirt out and carried it n an ice-cream pail to my garden 5-10 ft away. Pretty light work for most people and I worked slowly over 3 days taking naps in between. Then I woke up on the fourth morning in severe lower back pain. I went to my physio who diagnosed it immediately as a bulging disk at my L4-L5 level. I’m now back to physio twice a week with traction and it is slowly helping, as long as I don’t bend, lift or sit (for more than a few minutes) for 6-8 weeks. But it just goes to show it doesn’t take much at all to cause serious injury. I’m sure many of you have similar stories.

  • Maddy

    I’m happy that I have stumbled across this website. My husband 24 years old, has had dystonic cp his whole life. He has never been able to walk, feed himself, use the restroom by himself, or anything of that sort. Recently his falls have been increasing.. I guess my question is how do we improve it from here? I think of us getting old together and while the thought intrigues and excites me, I’m also scared that I won’t be able to provide the care he will need?

  • Bianca Ramirez

    Hi, my name’s Bianca and I’m writing on behalf of my aunt. Her name is Margarita Dominguez and she is 62 years old. She was born with CP and scoliosis. When she was younger she could walk with the assistance of her crutches and she could perform her daily activities. She would babysit me and several of my cousins and siblings. As she got older she developed arthritis in her knees and she had to use a power chair to get around because she couldn’t keep her balance. At 62 she is no longer able to care for herself. I came across this one day because I wanted to know more about what it’s like for people with CP. I love my aunt dearly and after reading this together not only have I gained insight but so has my aunt. As I read the comments out loud to my aunt she began to cry because for once she didn’t feel alone in this journey. She enjoyed learning more about her condition and hearing about other people’s experiences.

  • Julie

    54 year old female. diagnosed with CP at the age of about 14 months old. Spastic, left hemi-paresis or in my terms affects the entire left side of my body but the only thing anyone would ever notice after the brace was removed from my left leg at the age of about 11 was I had a very slight limp or shorter stride on the left side. Even the spasticity did not bother me. I went months at a time without even remembering I had it. I always say the only thing it ever kept me from coin is that I was never a cheerleader. Well, seriously, other than a few aches and pains over the years and a pain in the right buttock that persisted but that every doctor blew off as bursitis and threw an anti-inflammatory at me for, i exercises daily and lead a full active life. then one day at about 50 &1/2 yrs old i awakened with pain in my left groin. Over a few months time it persisted and worsened to the point were i was in tears. Went to a doctor:sent for an MRI;said fluid in joint so couldn’t get clear picture but looked to be not narrowing of space. so for 5 more months i walked around thinking i was nuts until one night something, with no warning once again, caused nearly immobilizing pain and stiffening across my lower back. found another doctor. X-rays performed and he entered exam room and said to me no wonder you are in so much pain you are bone-on-bone in your left hip and have spondylolithesis in the lumbar spine most likely causing stenosis which subsequent MRI’s did show(severe) plus tendonosis of the hamstring tendon on the right side (which had continued to worsen over 14 years) at the insertion point of the ishisal tuberosity. Anyway when the hip was replaced it was found that there was horrible destruction to the femur, the only thing holding the muscles in place was bone spurs and an extra long shaft had to be put in to stabilize the femur and i have never been able to rehabilitate the hip and am now in worse pain i think due to greater trochanteric bursitis that will not let up even after numerous steroid injections. i have refused anymore (and Mind you I doctor at the Mayo Clinic, supposed to be #1 in the nation). Now they have found that if I do not undergo surgery for the stenosis i will most likely will not be walking because it is stenosis with radiculopathy in the lumbar spine and stenosis with myelopathy in the cervical spine. And then after this surgery they have determined that not one but both of my knees have to be replaced. The right is worse than the left from overuse they say and the left just from the ravages of the CP. My point is: no matter how well you think you are doing you need to be keeping an eye on the damage it is doing to your skeleton.. Do not let the doctors tell you that if you don’t feel any pain there is not a problem. That was not the case with me.. CP is constantly putting stress on joints, even when you are sleeping. not much was offered to my parents in 1962 when i was diagnosed. only bracing. This was just an FYI. It can be sneaky as it was in my case. i hope i can say i am doing better one day in the near future but frankly I am afraid of what the back surgery will do, especially since I did not have such good results with the left hip. Anyone out there that has CP and had Surgery with a fusion that can tell me what to expect? One physiatrist at Mayo said don’t do it but both Neuro Spine and Orthpaedics say I don’t have a choice if i want to continue to walk.

  • dee kee

    My son has c.p. he is 23. Has pain and walks with a limp. What can he do now to prevent the effects of c.p. getting worse.

    • Michael

      have him soak in the bathtub in hot water to lessen muscle tension this will only help a little to relieve tightness that often leads to soreness

    • Tanya Lorge

      The best advice I can give from someone with mild c.p. is keep moving. Muscle atrophy and spasticity are his worst enemies. If you can walk, do and continue walking or you could lose your ability to move.

      I would like to connect with some others with CP so find me on Facebook.

  • Sherry Sanford

    How is it possible to be diagnosed with cerebal palsy at the age of 74 when I have never had any difficulty of this nature before ?

  • Ron fox

    Hi i am 28 with cerebral palsy i have been with it since birth the docs said it is bad but with therapy everyday for 9 yrs its became mild now in my late twenties im curious about the pain and symptoms getting i cant find no info plus i dont know what to expect in the future

    • Pip harrington

      Hi there am pip u r young u should not worried about it just get on with normal life eat healthy be active more active the stronger you become I hav mild ceroble palsy am 31 am expire cling really bad bl & arm problems but I keek moving the best way. May job is to just sit on a till all day not doing me any favours . Be positive evry day say u can do stuff that’s what I did & it helps. A lot .

  • Joseph L. Bouley

    I am a 49 year old male born with Cerebral Palsy. My chief pain is from my legs, knee and back, and “slow” with speech and thinking. At the moment i am not employed, but do not collect any disability compensation (which I think i should). When it comes to my comfort from pain due to my disability, i due rely on RX narcotic pain pills. if it was not for the relief i receive from the prescription pain pills and other meds prescribed by my physician i would not be able to perform any everyday routine actions. My current physician is doing the best she can to keep me pain free and functioning in society, but i feel that the state is restricting her from prescribing the best pain pills that she can. I try to be active but it is getting tougher and tougher. i do love life, but it is getting more difficult for me to get more out of life that i should. I know some people have different opinions about narcotics, but they are the way to go (especially if you are as old as i am). i just feel individual states should be more relaxed when it comes to the medications that a physician can prescribe for there patient. All i am trying to do is to live as comfortably as i can for as long as i can.

    I can tell you that i feel that i should be prescribed more pain pill per month that what i am currently receiving ( or a stronger prescription). i am not a junkie or an addict, i remind people that i was born with a neuro/motor disorder and brain injury and i do my best to be a productive member of society.

    Please do not condone me speaking my peace, i just want to stay a productive member of society…I love life, and if i have to live on narcotics (and use them responsibly) to stay functioning, no one else should have a problem with it. i am a Roman Catholic and these pain pills keep me productive, and help me maintain a healthy weight, as well as helping me with my equilibrium.

    God Bless you all..and especially all the physicians, psychologists , psychiatrists, and over all scientists reading this. Please say a prayer for every one in the world suffering from ailments, diseases, and over all sickness.

    Thank you all,

  • Harley

    I’m so happy I found this site, my son Austin was born in 2014 with CP. Ive been searching for out comes of CP as he gets older, What should I prepare for, I have been so upset thinking my son will never be able too grow or live his life. I’ve read every comment on this page, and I so glad everyone as overcame CP, and not letting it effect there life. As a mom, I just want the best for my son, but I don’t want him too be in pain. Is there any treatment for pain in CP too help with age.?

  • Jennifer Dennis name is Jennifer. .I have a mild case of cerebral palsey. I was diagnosed in my 30 and am now 42..I am having some issues with my behavoirs and having an eeg done next week….anything to be concerned with? Just a little concerned. Thanks

  • Theresa

    I am a 57 year old woman with mild spastic cerebral palsy due perhaps to being two months premature. I attained a Master’s degree and have had a success career and am able to live independently. I walk with the aid of a walker. The casual observer has no idea whether I have a back injury or mild arthritis. So indeed I am fortunate. The most pressing challenge is unremitting fatigue to the point of exhaustion. This has been something I have pushed through since my teens. But it is getting harder to do so. A secondary source of concern is the pain I experience when it is humid. Has anyone else encountered debilitating fatigue or pain aggravated by humidity? Comments welcome.

  • Pip harrington

    Hi there I have mild curable palsy am in my early 30! I’ve noticed in my self I am getting weaker not just on my left side but my rite am suffering really bad back ack & lower back legs shoulders! Now I would like 2 know is any one else suffering from these symptoms! Sick of people saying it’s all in my head & that it doesn’t have any thing to do with credible palsy! But I’ve seen ppl in good condition at my age! & they just like they were in the late 20.

  • natalie

    i have mild c.p. i am 36 years old. i am married with a 12 year old daughter. i started having pain after i gave birth to our daughter. and now it was got worst. i worry about having to use a chair.

  • Deb W.

    CP is not curable. It is diagnosed in toddler-hood. You should consider another physician to help you with your ailments.

    • GettingHealthierNow

      i think it’s an autocorrect typo. curable = cerebral. :-)

  • Deb W.

    I’m trying to understand how you were diagnosed with CP at age 30. This is a neuro-muscular condition. Could you be in the incorrect forum?

    • Michael Moore

      As a retired Occupational Therapist, CP was not diagnosed until post Grad (age 40) Born anoxic, during childhood the doctor’s response to deficits were mostly “he’ll grow out of it”
      The teasing and bullying during grammar and high school only added to the charges by Dad that I was lazy.
      Overcompensation led to a motocross championship (1980) and 5 gold medals in swimming (senior olympics). The price must be paid. Over the past 10 years, tendon ruptures, swallowing difficulties and degeneration of articular cartilage have been a challenge. More to come, if you are interested, I did work in OT with CP kids, some experiences may be of help
      Thank you for your service

  • Deb W.

    As far as I’m concerned, this is a relatively non-painful condition, or I just have a very high pain threshold. I have spastic CP of the left side and right leg. I perform surgery and work 10 hour shifts as a veterinarian. I’m highly intelligent and have 3 kids and a great husband. I swim, ride bikes, down-hill ski and ride horses. I cannot run, I hate walking, I cannot inline skate or do things requiring exceptional balance. If I walk too far, I get lower back aches, but other than that, pain free. This is of course.. me. Everyone will be different. My advice is to treat your precious little one like a normal little tyke and try to teach him everything you would a normal child ( assuming he can ambulate at some point ). You do not have many details yet on how he will be affected because he is likely barely walking yet. I walked late, age 2, but that has not stopped me from doing all of the above.

    • Natalia

      Hi Deb, what type of CP you have? My daughter, 2 years 9 months with spastic diplegic CP still does not walk independently even though is cruising along furniture/pushing toys for more than a year and walks by one hand for a few months. I think the problem is she still cannot stand independently quite well, only when at purpose. do you know any details of your standing/walking as a child? thank you!

  • Deb W.

    I am a 43 years old female with a mild spastic CP that primarily affects my left side. I have 3 kids, am bilingual, and I am a veterinarian with special interest in soft tissue surgery. I have never let this ‘condition’ stop me and my parents always assumed the best outcome for me and treated me as such. For all those out there who may have children with CP, the best thing you can do is treat them as normally as possible and certainly do not let them get away with any self-deprecating behavior. ASSUME your child will succeed. ASSUME that there will be a niche for that child in this world that will allow them to be healthy and happy. I just wish there were more willing people to work with people such as myself, through adulthood. My flexibility is decreasing and that is my primary complaint at this point. It sucks being stuck in a body that does not work properly, but it should not stop anyone from achieving goals.

    I stay active by exercising 3-5 times per week and I have discovered that keeping my weight down is very important in preventing falls and keeping me more fit and stable. For those with family members using wheel chairs, remember that there is a very real, intelligent person trapped in that body that does not work properly. My biggest fear is having people being judged on their intelligence level just because they cannot move their muscles properly. It must be so frustrating. From my experience, people with CP are some of the most intelligent people I know, with tremendously high IQ’s.

    • Natalia

      Glad i found this site! My daughter is 2 years 9 months with spastic diplegia. she was born 10 weeks early, was diagnosed with CP at 16 months and was given a very good prognosis. But she still is not walking independently but with walker. She does wear AFOs and can run with walker. She makes a few independnet steps for bribes every now and then for 6 months now but she does not walk short distances in the house on her own. It was mind blowing to me why, and i think it is because she truly is not very balanced. She can stand independently for a while, but not all of the time, and she would not not let me go if i just want to ‘put’ her there because she is afraid of falls. The doc suggests BOTOX, but i refuse at this time because I think she has to stand first with a very good balance, then if she cannot walk we will consider BOTOX. what do you say? Thanks!

    • Destiny Dry

      Deb, I too had parents who treated me as if I had nothing wrong and expected nothing less from me than they did with my brother and sister. I’m 39 with mild spastic diapligic CP. I was diagnosed around 2 years old. I went to college, have received my masters degree, and have been a 4th or 5th grade teacher for the past 17 years. I live a “normal” life…which sometimes gets me into “trouble.” In saying that, I mean I fall a lot and frequently get hurt. My falling has increased a lot in the past couple of years…sometimes causing broken bones. Stiffening up is definitely a cause as my flexibility is rapidly declining. I too notice that my weight being down helps as well as exercise. I get frustrated at times with not being able to do things I use to and how tired I am at the end of a school day. I don’t know if it is getting “older” or the CP factor had something to do with it. I fear, but do not dwell, on my life in the future and what it may look like. I look forward to the day when I can retire and my new job will be “taking care of me.” But I first need to get my kids through college…maybe in the next 4-6 years. I’m thankful I have such a supportive husband who says I can do this now, but I’m too fiscally responsible for that….but I do I have a plan. I just hope that anything I lose, I can gain back. I am no stranger to hard work.

  • Rachel

    I’m a 27, almost 28 year old female diagnosed with a mild case of CP somewhere around the age of 14 months (I think). I was born very premature and am a twin. I have lived a largely normal life with activity in sports, etc., most don’t know I have CP unless I tell them. When I overdo and get tired (which I am noticing happening more frequently in the last two or three years) I have a more visible presentation of CP symptoms in my legs. This could be a more pronounced “limp” when I walk or less control over my muscles in which my feet point inward.

    Lately, I’ve noticed significant and increased hip pain, particularly after extensive amounts of time sitting. Cramping in my hands is also becoming apparent, which is a major detriment to my work.

    Is it common for symptoms to manifest in different ways as one ages? Is cramping in the hands something that is typical?
    Does anyone have any idea what is “down the road” for me that I should prepare for?

  • paizley

    My friend’s son, age 55, is having increasing difficulty with his legs. He falls about once a week. Surgery had been options for over 10 years ago but he remembered the surgeries he had as a teen and did not want to go “there.” Unfortunately, his mother feels it was a wrong decision. He is now having problems driving. He used to take his young sons to school (had children late in life with a younger woman). He can’t even help his mother carry groceries into the house any more. His upper body strength is good but the function of his legs has deteriorated. He is being diminished bit by by bit but does not want to acknowledge it, especially with his mother. She is concerned but he denies any current issues he’s having. He is receiving disability. He may end up in a wheelchair or having to use a walker. His truck may have to be outfitted for handicapped. He really is in denial about his progressing CP. His sons have to look up to him and he feels he’s not the image of the father he wanted to be.

    Anyone have any suggestions for him? His mother has always thought he was in denial about his CP and wouldn’t deal with it.

  • Natalia

    Glad i found this site! My daughter is 2 years 9 months with spastic diplegia. she was born 10 weeks early, was diagnosed with CP at 16 months and was given a very good prognosis. But she still is not walking independently but with walker. She does wear AFOs and can run with walker. She makes a few independent steps for candy every now and then for 6 months now but she does not walk short distances in the house on her own. It was mind blowing to me why such a slow progress (and sometimes seems like she os going backwards a bit), and i think it is because she truly is not very balanced. She can stand independently for a while, but not all of the time, and she would not not let me go if i just want to ‘put’ her to stand because she is afraid of falls. The doc suggests BOTOX, but i refuse at this time because I think she has to stand first with a very good balance, then if she cannot walk we will consider BOTOX. what do you say? any suggestions, tips, information would be highly appreciated. My daughter does not have any other issues (her fine motor skills and her speech, and global development are great). Thank you from the bottom of my heart!

    • Krishna Kasibhatta

      Hi Natalia,

      Just chanced upon this site and comments while looking for inspiring stories around children with Cerebral Palsy going on to become medical doctors in their life. I have a CP son (8 years and 1.5 months now), who was advised to be given Botox also early on in his life around 2.5-3 years age. We did administer it once, but did not find it to be effective – meaning it made no visible difference. We did not give any further Botox. However, with persistent physical therapy that was given – an hour every day Monday-Friday from the age of 6 months till date, he started walking this year from February. And now he started pedaling a bicycle with support wheels on either side of the back wheel for the past 2 months. While I understand each kid’s situation could be different, I see some similarities such as my son also refused to stand alone without support until he was almost 5.5/6 years old. He always had this fear that he will fall down and wanted someone directly behind him even though he achieved the ability to stand (no walking) by the time he was some 4 years old. So it is a hard grind, but go as much as possible natural with a lot of physical/occupational therapies so that the child achieves maximum possible capabilities of her still growing body. We live in India and one thing I understood is that therapy is something we should incorporate into the natural life of the child as much as we can – meaning asking them to do stretching to reach something, trying to stand up etc. In the start it is frustrating to see that despite any amount of cajoling the child’s fear seems something that you can’t dislodge, but it only needs one twitch in their brain to give them a confidence while they also need to gain enough muscle strength. What helped my child is that he could get to weight training with his legs at the age of 7 (up to 50 lbs, 10 pushes, 6 rounds in each therapy session for two months). But prior to that he needed so much constant physical therapy to get to a stage where he could take on the weight training. And he is a small build boy weighing only 42-44 lbs. Hope some of this information is helpful. If you need any help in understanding more about what worked for us and what did not, I and my wife (Sunitha) would be more than happy to share our experiences either over e-mail or other means.

  • Erik

    Hello i am 37 and also have a mild condition of CP and I am finding more difficult on a daily basis to deal with it.

  • Erik

    I myself wasnt diagnosed until early twenties when my mother working for plattsburgh college managed to get me into the tbi institute where it was finally diagnosed after years.

  • susan jones

    So glad to have found this sight! Only a few years ago there was almost no information on aging with cerebral palsy. I am 63 and have mild CP in my right side. I have led a full active life and have 2 grown children and 3 grandchildren. I have always been a very active person and still walk, walk/run many 5K type events. A few years ago I began to experience unusual joint and muscular pain and noticed a change in my speech and swallowing. After many, many tests the doctors could find no “real” reason and either prescribed pain pills or muscle relaxers, none of which work for my life style. Due to the palsy, MRI’s are a frustrating experience that usually don’t get any results. I was so relieved to see other people experiencing the same symptoms. I would be happy to be a part of any study that tracks symptoms of cerebral palsy. The more information we have the better our life. Some days I wake up hurting more than others. I have found that diet plays a big role in how I feel. At this point diet and exercise are my focus for staying mobile. When i feel a decline in mobility and speech patterns it can be very depressing.

    • GettingHealthierNow

      thanks for sharing your story, susan – so much resonates with me. i’ve had mild CP mostly effecting my rt leg and i do walk with a slight limp. these later mid-life degenerative issues, i’m in the process of figuring it out still but in my case muscular tension in my neck has contributed to the vagus nerve being impinged. the sternocleidomastoid muscle is tight and larger on my rt side. it has caused gut motility problems, nasal congestion, even immune issues, tinnitus, anxiety, etc. the vagus nerve can even give people a hoarse voice, which may relate to your situation. hope this helps. i’m very glad to have found this site and will try to post my progress. i have the feeling trigger point injections to relieve muscle tension will be a part of my recovery. good luck to you and all!

  • kemboi

    Thank you for sharing this Joe. The laws and regulations are misguided at best. They are foolishly aimed at saving an addict. Which anyone who works with addicts know that they will always find a way to get their fix. It is the people like you, my sister and many others who need these medications to be productive and live their lives as fully as possible. Yet because they are law abiding citizens the experience many unnecessary barriers of either being under treated for pain and spasticity or burdened with ever increasing appointments that do little more than check a box. I get so frustrated when money is spent on unnecessary appointment when there are necessary appointment that you have to battle to get reimbursed for.

  • Pat O’Hanlon

    I’m a 60 year old mom and caregiver to my 25 year old amazing son who has cerebral palsy and is a spastic quad. Although he is dependent for all his ADLs he lives his life to the fullest and enjoys and cherishes every moment. In our state housing choices are very limited for someone with a severe disability. I was wondering if anyone has any positive experiences to share, and even better, success stories on finding living arrangements in the community.

  • Crystal Nelson

    I am 32 and have Spastic Diplegia. Does anyone here have difficulties with pap smears? Pap smears are really difficult for me to have. Is this normal for people who have Spastic Diplegia.

    • Margaret Smith

      I’m 45 I also have spastic diplegia CP and I have always had a difficult time when it comes to pap smears. I always ask my Dr. to use the smallest size speculum. I also have hip dysplasia in both of my hips. Even though I’ve had 4 babies the pap is not easy and still request the small speculum.

  • Michael Lynn

    Hi, my name is Mike and I was born with Cerebral Palsy, albeit a mild case. No one ever told me what type I had, or have, except that when my mom used to take me to Shriner’s Hospital, they told her that I would never be able to walk and that I would be a vegetable for the rest of my life. But, ever since I can remember, it’s always been pretty mild.

    I am now 46, married, with a 10 yo son. You would not be able to tell I have Cerebral Palsy just by looking at me. I don’t remember most of my childhood being bad as far as the CP goes, but I do remember the long car rides to Shriner’s. However, I have had several injuries to my back over the last 20+ years which resulted in 4 bulging discs, degenerative disc disease, and arthritis in my spine. I was diagnosed with the back stuff in 2007 or 2008. On top of all that, I have a small curvature of my spine, which was diagnosed as a mild case of Scoliosis.

    I have found out things about CP that were previously thought to be causes and effects of CP, are not the actual cases now. I still have a mild case, but I can definitely feel the aging aspects along with the condition. I’m slower, and more labored in getting out of bed or just not feeling much like going out. I work part-time to full-time depending on the time of year at Six Flags here in Texas. If I work at the front gate or at rides or haunted houses, I’m on my feet my entire shift(with the exception of lunch breaks). If I work in the parking lot, I either drive trams or stand elsewhere. Walking for long distances hurts my legs, my feet, and my back, but I have no physical problems with either my legs or feet.

    I have been working since the age of 16, and have lead a normal, messed up life, just like everyone else, mildly joking of course. I certainly have not lived to my full potential like most of you have with Masters degrees and such, and I also have had the feeling that I am not able to provide for my family like a husband and a father should, not only because of the CP, but with my back, and with the fact that I have onle retail sales under my belt, there aren’t many jobs I can do with my poor skill level. It also doesn’t help when my wife isn’t fully understanding or as compassionate as she should be, but it is what it is.

    Anywho, just thought I’d share my story of adversity. Sorry if it’s a bit long.

    • Patrick smits

      I have cp as well but I’m still a teen did you deal with a tight neck and spine as a kid?

    • Anne Haehl

      Your employer is required to give reasonable accomodation for your disability. You need a dr’s recommendation as to what would work. Could you, for example, sit on a tall stool rather than sitting? Can they assign you to the tram full time? Also, if that doesn’t work you may be eligible for rehab through your state. As far as your wife–she may lack understanding because, as you say, you look normal. Please look into counseling. If possible, find a therapist who is familiar with CP and disability. God bless you and good luck.

  • John

    My wife of 44 years has had spastic diplegia since birth. She is 65 now and still doing quite well (and is still beautiful). She has given birth to our daughter and raised her and a second adopted child. Marilyn is a college graduate as well (where we met). although she was a slow walker with a cane she moved around the house easily enough and with my arm we trudged around parks and even Disney World in younger years. Now at 65, she can still get around the house but walking has slowed appreciably and any distance is pretty much impossible. For shopping and vacationing with grandkids she has “graduated” to a mobility scooter. Marilyn has often said, John where are all the people like me? We haven’t seen many/any. In recent years we notice that it is more difficult to stand up straight (hips tip more significantly), walking is more difficult, bending and dressing is very difficult (I help), it is difficult to roll over in bed without help, and most of all, she just feels weaker and more spastic. She is beginning to experience more back pain as well but it is not too bad unless she has stood all or most of the day. Marilyn is going to see a neurologist next week to just find out if there is anything to help her ward off the continuing weakening and stiffening. We both suspect that not even we can hold off old age forever but it would be nice to fight it for a while. Wondering if anyone has tried Botox and does it help any?

  • Margaret Smith

    Hi, my name is Margaret I’m 45 yrs old and I’m so happy to have found this site. It’s nice not to feel so alone. I was born with mild spastic diplegia CP. I was born at 26 weeks in a bathroom in the toilet (of all places) 2lbs & 15″ my mother told me that my birth happened in minutes and they labeled it as a spontaneous abortion birth (not caused by my mother, she wanted me.) There was no 911 to call and I did not receive medical attention for about an hour. My mother knew something wasn’t right with the pregnancy with me but her Dr.’s would not listen because she had 2 other normal pregnancies. Sounds like a scary night but I’m grateful to be here. I did stay at Doernbecher hospital at OHSU in Portland Or. for about my first 3 months. I also was in a special program with that hospital that had monthly PT & I had a tendon lengthening surgery done on the inside of both ankles at 12 yrs. Then I wore bilateral AFO’s but in middle school kids are not so nice so there were many days that I hid them in my locker and wore my P.E. shoes. I was in regular school but I did need special help in reading and math & the help was only available until 6th grade. I stopped wearing the AFO’s in middle school due to mean kids. My mother never continued any Dr. apts after the special program at Doernbecher ended. I guess we just wanted me to be normal. I did ride my bike everywhere growing up, walked all over town with my best friends ( i was clumsy as a kid/teenager and would fall or trip) I could not do any sports but I did participate in P.E. I graduated High school with my class. I got married, I gave birth to 4 children but raised 5. I have been a single parent for 12 yrs and raised my children on my own. Even though I had to fight to live & many kids/teens are mean as heck I still have a few close wonderful friends from childhood and I know they will always be with me. I have to also say it’s an amazing gift to be a mother. My kids are awesome! :) I was also able to work full time and my last and favorite job was at a nursing home. I was a med-aid/caregiver and I was in charge of swing shift for about a year and a half. Then my life changed at 43. I was leaving work on June 30th 2013. I was very tired I had worked 5 days had 1 off then worked 4-10 hr day shifts as the med aid. This is a very busy position I didn’t have really any time to sit. My shift was over I was walking out but there was a resident in the door in a wheelchair who needed some help. She’s one of my favorite’s we laughed & I helped her in the building and snap! The 5th metatarsal on my left foot broke, a complete fracture. somehow i walked to my car and drove home. It needed surgery with a nice long screw that runs the length of the outside of my left foot. My story is not over but I am too long winded I fear. So I will continue at a later time. I now have a team of Dr’s and many more issue have come to light. Thank you to everyone who shares on this site.

  • Sara Kirkbride

    Hi, my name is Sara I’m 18. I was diagnosed with Cerebral palsy at 15 years old but I also have epilepsy which was diagnosed at 3 months old.
    Lately, I have been feeling an increase in pain in my right leg and foot (my bad side) and just want to know what should I do ? I have never been to the doctor s about CP yet as I was missing diagnosed. So, should I go to the doctors ??

    • Sheena

      Yes, I think you should..

  • Tom Reed

    Has anyone ever tried Osteo Bi-Flex to help with Cerebral Palsy?

  • Kimberli Hutton

    Hi I’m kimberli Hutton I was born three months early and has cerebral palsy since birth I’m 24 and I’m wondering if people with cerebral palsy are able to get pregrant and have a normal pregnancy

    • Dawn Hutter

      Hi Kimberli.
      I have CP and have 2 sons. I had no problems with delivery because of it.

    • Adrienne Cameron

      Yes we are. I have an 18 mo old and there are many others. There is a group for moms with CP on facebook that also welcomes prospective parents.

  • Sheena

    I was diagnoised with CP at birth and I was able to walk ok but not much. Now, as an adult my left leg and foot be killing me in pain if I stand longer then 3 hours. It is so hard for me to keep a JOB because I can’t stand for long periods of time. I really hate it to because I really be trying.Tears……………

  • cpvd

    I was diagnosed as a baby that I have spastic pyramidal cerebral palsy. They said I would never walk or talk or do anything anyone can. Even labeled me as “mental retarded” which I clearly am not. You cant tell i even have it unless i tell you. I wore braces on my legs and had physical therapy until I went to middle school. The pain in my legs have been constant. Always there. Never goes away. I can’t Walk fast. I can’t stand for a long-time. I can’t Walk a far distance. My legs will hurt to a point that I can’t Walk. They even have gave out on me. I just turned 16. Do I need to go to the doctor about this.

    • Adrienne Cameron

      You sound very similar to me. I am in my 30’s now. I would highly recomend fostering a good relationship with a physiatrist- a physical medicine specialist who specializes in living and aging with chronic conditions.

  • Amy Varady

    Hi my name is Amy. I am 36 yo and too have mild CP. I don’t know when the doctors had diagnosed me but I do know I was a preemie and had pneumonia when I was born. I had to wear the AFO’s (which I hated and threw them in my closet so my mom wouldn’t make me wear them) and had to do PT a lot. I even had to have a therapist come to my school and help out with my classes. I’m married now don’t know if I’ll be able to have kids or not because I had HPV (causes cervical cancer) back in 2006. I went to college and got an Associates Degree and then went and got a Medical Assisting Degree (It was too much for me to handle though) so I now work with my step dad and brothers at their office. Enough with my life story for now. I’m concerned with the way I’ve been feeling lately. I feel tired all the time, my neck and lower back bother me more, and I have tingling and numbness in my hands and feet. I went to my doctor about the tingling and numbness because I thought I wasn’t getting enough circulation throughout my body. She said I was fine because I can still feel the ends of my fingers and toes. I have spots on my feet too but I don’t know what it is. I asked my doctor about it as well and it seemed like she didn’t know what its from. Either she just doesnt care or just doesn’t want to help me out. Any advice on what I should do?

    • Jessica

      Hi Amy, I’m 28 and also have mild cp. I have gained 40 lbs over the last 2 years and have since had more mobility issues. My back, hip, knee, and neck all bother me and I was recently diagnosed with sciatica which causes pain in my lower back, down my left leg and numbness and tingling in my lower leg and foot. I am probably going to a spinal specialist soon because the pain is getting unbearable and I’m having a harder time getting around. It’s quit’s scary to be having so many problems at such a young age. Just wanted to let you know I understand what you are going through.

      • Amy Varady

        Thanks Jessica. It’s not fun being in pain all the time. People also think I’m lying, which I’m not, because I ask off so much to go to the doctor. I just ignore them and move on with my life.

  • badw0lf

    Hi i’m Gina and i am 27 years old. it’s very frustrating to *attempt* to properly research on my life long condition only to find a lot of the information surrounding children with CP and not really the adults. I think that I have a pinched nerve in my ankle, and my podiatrist has 0 experience in CP so I have to go elsewhere. I’ve been underweight most of my life until I hit college (big surprise) and I think my walking gait and some of the weight gain puts more pressure on my foot. It is excruciating pain if I walk around for more than 3 hours. I used to pull 12 hour shifts @ 19 yrs old- standing up the entire time. Now, I can’t even go on errands for too long or I’ll experience the pain I am right now.

    There needs to be more information about ADULTS with CP and I’m pissed there’s only general information like eventually losing the ability to walk. No shit Sherlock.

  • drew

    I completely understand. I am 29 with spastic cp of the rt side. in order to even make it out of bed due to chronic pain so severe I’ve tried to end my life many times. I found pain management doctor after years of ER visits and numerous drug trials, therapy, otc meds. now I’m on a fentanyl patch and Tylenol 3s for break thru pain, I also take robaxin for spasms sometimes require low doses of ativan for ptsd due to the abuse I experienced in my adolescents. I’m now functional and able to play with and teach my son

  • Cecilia Biller

    My husband will be 50 next month. He has mild CP on the left side with vision problems, as well. He has had two back surgeries. He comes home from his full time job, totally worn out. He can not do what he used to do. We are starting to look into how to approach the idea of permanent disability. My husband has always pushed himself to his limits in everything he has ever done. He never totally relied on the government for support. Now it’s time. Does anyone have any suggestions on how to go about this or if trying to get on disability is going to one heck of a struggle within itself? I am glad I found this site and feel for everyone and their struggles.

  • GettingHealthierNow

    hang in there, Donna – i had a similar thing happen after restarting an exercise program on a stationary bike, i hurt my lower back. i’ve since read even in the general population (not those with CP) as we get older exercise tolerance decreases, and to avoid inflammation it’s recommended to go very, very slowly. it sounds like you were being gradual, but maybe instead of doing three days straight, do your work in alternating days to give some recovery time. wishing you well on the road back. :-)

  • Julie Miller

    I was born with Little’s Disease which is also a form of CP. As a child, my balance and coordination when it came to movement and I had to have physical therapy up until I was about 10 at Sick Kids Hospital in Toronto. I don’t remember it much. Throughout my adult life, I forgot I had this condition and any pain I had or physical challenge I experienced, I would simply hide it through other actions and choices. Now as I am aging, I have great difficulty walking long distances, I have pain in my feet that have no injury, I have been told by my doctor I have an old spine due to degree of degeneration and osteoarthritis and other symptoms. There is very little to be found on Little’s Disease that relates to those that are aging with the condition. I know I will be getting a walking stick or cane soon to keep me aligned so I don’t swerve onto the road when I am on a long walk. Thanks for this little write up. I hope to find more like it.